Johns Hopkins Precision Medicine Center of Excellence for Multiple Sclerosis
The objectives of this registry are to advance multiple sclerosis care by:
- Identifying the anticipated progress of multiple sclerosis more exactly from the start.
- Predicting which treatments will be most successful based on how aggressively multiple sclerosis is progressing.
- Advancing treatment approaches through using the knowledge discovered to more rapidly improve care for patients now and in the future.
Overview
- Acronym
- JHMS
- Website
- JHMS
- Investigators
-
- Contacts
-
General Design
- Study design
- Registry
- Start - End Year
- 2017 -
- General Information on Follow Up (profile, frequency)
-
Participants are followed biannually.
- Recruitment Target
-
- Individuals
- Number of Participants
- 1,213
Access
Availability of data and biosamples
| Possible Access to Data | |
| Possible Access to Biosamples | |
| Other |
|
Timeline
Population
JHMS population
The population consists of patients with relapsing-remitting multiple sclerosis, progressive multiple sclerosis, or clinically isolated syndrome.
Selection Criteria
- Minimum age
-
18
- Maximum age
-
65
- Countries
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- United States of America
- Health Status
-
- Participants must be diagnosed with relapsing-remitting multiple sclerosis, progressive multiple sclerosis or clinically isolated syndrome.
Sources of Recruitment
- Specific Population
-
- Clinic patients
Sample Size
- Number of Participants
- 1,213
Data Collection Events
| # | Name | Data sources | Data sources - Biosamples | Start | End |
|---|---|---|---|---|---|
| 0 | JHMS - Enrollment |
|
|
2017 (March) | Ongoing |
| 1 | JHMS - Follow-up 1 |
|
|
2017 (September) | 2018 (February) |
| 2 | JHMS - Follow-up 2 |
|
|
2018 (March) | 2018 (August) |
| 3 | JHMS - Follow-up 3 |
|
|
2018 (September) | 2019 (February) |
| 4 | JHMS - Follow-up 4 |
|
|
2019 (March) | 2019 (August) |
| 5 | JHMS - Follow-up 5 |
|
|
2019 (September) | Ongoing |
Participating Studies
| Acronym | Name | Study design | Countries |
|---|
Harmonization Initiatives Included
| Acronym | Name |
|---|
Datasets
| Name | Data Collection Events | Variables |
|---|
Areas of Information Collected
- Socio-demographic and economic characteristics
- Death
- Lifestyle and behaviours
- Physical measures and assessments
- Birth, pregnancy and reproductive health history
- Laboratory measures
- Perception of health, quality of life, development and functional limitations
- Cognition, personality and psychological measures and assessments
- Diseases
- Life events, life plans, beliefs and values
- Symptoms and signs
- Preschool, school and work life
- Medication and supplements
- Social environment and relationships
- Non-pharmacological interventions
- Physical environment
- Health and community care services utilization
- Administrative information
Variables Content Summary
Areas of Information Collected
No Areas of Information Collected
No Scales Collected
Areas of Information Collected per per Population and Data Collection Event
No Areas of Information Collected
No Scales Collected
Networks
| Acronym | Name | Harmonization Initiatives | Individual Studies |
|---|
Last Update: 2020-12-18T10:33:32.410