BEhaviors, Therapies, TEchnologies and hypoglycemic Risk in Type 1 diabetes
The objectives of the BETTER registry are:
- To provide a general portrait of the population with type 1 diabetes in Canada in terms of demographics, treatment, frequency and consequences of hypoglycemia, lifestyle habits, and complications of diabetes;
- To measure the frequency and severity of hypoglycemic episodes;
- To evaluate the potential of new technologies and therapies to reduce the frequency of hypoglycemia.
Overview
- Acronym
- BETTER
- Website
- BETTER
- Investigators
-
- Contacts
-
General Design
- Study design
- Registry
- Start - End Year
- 2019 -
- General Information on Follow Up (profile, frequency)
-
Adults: Participants are invited to answer an annual survey.
Children: Participants only complete one survey.
- Recruitment Target
-
- Individuals
- Number of Participants
- No Limit
- Supplementary information about number of participants
-
As of March 2024, there are 3,929 participants enrolled in BETTER.
- Supplementary Information
-
Parents are asked to answer the survey on behalf of participating children.
Access
Availability of data and biosamples
| Possible Access to Data | |
| Possible Access to Biosamples | |
| Other |
|
Timeline
Populations
BETTER - Adults
The population consists of individuals with type 1 diabetes who are at least 14 years old and are living in Canada.
Selection Criteria
- Minimum age
-
14
- Countries
-
- Canada
- Canadian Provinces
-
- Alberta
- British Columbia
- Manitoba
- New Brunswick
- Newfoundland and Labrador
- Northwest Territories
- Nova Scotia
- Nunavut
- Ontario
- Prince Edward Island
- Quebec
- Saskatchewan
- Yukon
- Health Status
-
- Type 1 diabetes
Sources of Recruitment
- General Population
-
- Volunteer enrolment
- Participants from Existing Studies
-
- BETTER
- Supplementary Information
-
Participants were recruited by voluntary enrolment through the study website. If parental authorization is provided, children who participated in the BETTER registry are invited to pursue their participation on their own once they are 14 years old.
Sample Size
- Number of Participants
- No Limit
Data Collection Events
| # | Name | Data sources | Data sources - Biosamples | Start | End |
|---|---|---|---|---|---|
| 0 | BETTER - Adults - Baseline Phase 1 |
|
2019 (April) | Ongoing | |
| 1 | BETTER - Adults - Baseline Phase 2 |
|
2019 (April) | Ongoing | |
| 2 | BETTER - Adults - Baseline Phase 3 |
|
2019 (April) | Ongoing | |
| 3 | BETTER - Adults - Follow-up 1 |
|
2020 (April) | Ongoing | |
| 4 | BETTER - Adults - Follow-up 2 |
|
2021 (April) | Ongoing | |
| 5 | BETTER - Adults - Follow-up 3 |
|
2022 (April) | Ongoing | |
| 6 | BETTER - Adults - Follow-up 4 |
|
2023 (April) | Ongoing | |
| 7 | BETTER - Adults - Follow-up 5 |
|
2024 (April) | Ongoing |
BETTER - Children
The population consists of children who are 13 years old or younger and living with type 1 diabetes in Canada.
Selection Criteria
- Maximum age
-
13
- Countries
-
- Canada
- Canadian Provinces
-
- Alberta
- British Columbia
- Manitoba
- New Brunswick
- Newfoundland and Labrador
- Northwest Territories
- Nova Scotia
- Nunavut
- Ontario
- Prince Edward Island
- Quebec
- Saskatchewan
- Yukon
- Health Status
-
- Type 1 diabetes
Sources of Recruitment
- General Population
-
- Volunteer enrolment
- Supplementary Information
-
Parents of children with type 1 diabetes were recruited by voluntary enrolment through the study website.
Sample Size
- Number of Participants
- No Limit
Data Collection Events
| # | Name | Data sources | Data sources - Biosamples | Start | End |
|---|---|---|---|---|---|
| 0 | BETTER - Children - Baseline Phase 1 |
|
2019 (April) | Ongoing |
Participating Studies
| Acronym | Name | Study design | Countries |
|---|
Harmonization Initiatives Included
| Acronym | Name |
|---|
Datasets
| Name | Data Collection Events | Variables |
|---|
Areas of Information Collected
- Socio-demographic and economic characteristics
- Death
- Lifestyle and behaviours
- Physical measures and assessments
- Birth, pregnancy and reproductive health history
- Laboratory measures
- Perception of health, quality of life, development and functional limitations
- Cognition, personality and psychological measures and assessments
- Diseases
- Life events, life plans, beliefs and values
- Symptoms and signs
- Preschool, school and work life
- Medication and supplements
- Social environment and relationships
- Non-pharmacological interventions
- Physical environment
- Health and community care services utilization
- Administrative information
Variables Content Summary
Areas of Information Collected
No Areas of Information Collected
No Scales Collected
Areas of Information Collected per per Population and Data Collection Event
No Areas of Information Collected
No Scales Collected
Networks
| Acronym | Name | Harmonization Initiatives | Individual Studies |
|---|
Last Update: 2024-03-14T17:28:32.933